Emotional and social support is provided by the expert clinical psychologist and social workers to the person in need of support. Person with Hemophilia and their families, person with HIV/AIDS, disabilities or any other disorder requiring psychosocial Support is covered under this programme. Lot of youth and their parents contacts EM to seek psychological and Emotional counselling on various issues related to them like relationship, career, family issues, marriage and procreation. Growing up issues from adolescents also came up in number of sessions.
Referral programme is also under way wherein the patient’s with serious difficulties are referred to the hospital and it is seen that they receive proper help
Psychosocial Health is the wellbeing of an individual in both psychological and social aspects of life. It also refers to the to mental and emotional health of a person. For instance, mentally healthy people react positively to situations, compared to unstable people; hence, irrational thinking may be a sign of poor psychosocial health.
Under this program we provide Individual and Group counselling sessions as a regular activity. The beneficiaries are Adolescents, youth and parents.
Psychosocial Support in Haemophilia
Hemophilia is a not very common condition and as a result a large number of people are unaware about it. Specifically, Hemophilia population’s need of Psycho Social Support is underestimated due to myths, stigma and lack of knowledge.
The definition of psychosocial support is a long-discussed issue and there is not one valid answer for it. Psychosocial support comes out of experience with community based mental health and social work models; it is not a separate entity but interwoven with all the other programs and services that help children with hemophilia develop into healthy, productive adults. However, Psychosocial care and support in Hemophilia are interventions and methods that enhance the ability of children, families with Hemophilia, and communities to cope, in their own context, and to achieve personal and social wellbeing; enabling PWH to experience love, protection, and support that allows them to have a sense of self-worth and belonging. Such interventions and methods are essential in order for children to learn, develop life skills, participate actively, and have faith for the future.
Haemophilia is a condition in which one of the clotting factors in the blood is missing; it is an inherited condition in most cases; it is lifelong; and at present can’t be cured. The symptoms can, however, be completely corrected by the injection of a concentrate of the missing clotting factor into a vein.
Any patient with chronic illness, which causes some amount of disability, is bound to feel distressed, anxious and sometimes depressed. Persons with hemophilia and their caretaker families also pass through difficult moments of problems arising due to pain, suffering, treatment cost and decisions to lead a near normal life which can at times results in helplessness, anxiety or depression.
Helping patients to acquire a sense of self-control and efficacy helps in enhancing social adaptation and health. Experience of pain and suffering is less in patients and families who think controlling power is with the person himself and lack of knowledge or inability to cope with the problems. Modification of these factors is important to reduce distress and improve quality of life for any patients.
All patients do not necessarily experience these problems. There are individual differences on how people react to the illness. Some patients can accept and cope with even a severe disability whereas some cannot tolerate even a mild pain or problem.
Support Groups play a crucial role in sensitizing, sharing and understanding the needs and concerns of PWH and their immediate family members. People learn by example. Once they know that there is someone else who is in exact position as themselves their resilience to overcome the problem increases manifold. Whether it is the PWH or his family member, it becomes easier for them to give vent to their suppressed ‘negative feelings’ in front of a sympathetic and supportive group.
Women, Children and Youth support groups of Hemophilia meet every quarter.
Women Support groups
Such a support group helps the carrier women, mothers of the PWH and other women members of the PWHs, to understand and deal with the disorder in an effective manner. In a conservative society such as ours, the mother is usually blamed and cursed for the problem. This causes much grief and disharmony in the family. Such women find a medium to express their pain and learn different ways to deal with the problem. Similarly wives of PWHs from whom the complete fact was hidden till after the marriage, finds solace from the knowledge that there are others in similar condition and if proper care is given to the person afflicted with the disorder he can lead a normal life like anyone else. Two women support groups are active in Delhi and Faridabad.