Parents Empowering Parents (PEP) Program

The PEP Program is an innovative peer-to-peer skills training program to introduce parents to the tools for handling the realities of raising a child with a bleeding disorder. The PEP program is led by social workers/psychologists, peer parents, and healthcare professionals who use classroom discussions, role-playing, and hands-on experiences to educate parents about the types of skills needed to effectively parent a child with hemophilia

Manual Translation ‘A Program for Parents of Children with Bleeding Disorders

Hemophilia is a not very common condition and as a result a large number of people are unaware about it. Specifically, Hemophilia population’s need of Psycho Social Support is underestimated due to myths, stigma and lack of knowledge. The definition of psychosocial support is a long-discussed issue and there is not one valid answer for it. Psychosocial support comes out of experience with community based mental health and social work models; it is not a separate entity but interwoven with all the other programs and services that help children with hemophilia develop into healthy, productive adults. However, Psychosocial care and support in Hemophilia are interventions and methods that enhance the ability of children, families with Hemophilia, and communities to cope, in their own context, and to achieve personal and social wellbeing; enabling PWH to experience love, protection, and support that allows them to have a sense of self-worth and belonging. Such interventions and methods are essential in order for children to learn, develop life skills, participate actively, and have faith for the future.

Quantitative Achievements

SOME TESTIMONIALS

National Team

PEP Memories

PEP Timeline